Materials & Resources
Links
We are regularly out on the web. When we find a great site we list it here for you to enjoy. From the list below choose one of our weblink topics, then select a URL to visit.
Alpha-1 Antitrypsin Deficiency Emphysema
- A resource used to identify those affected by Alpha-1 Antitrypsin Deficiency and to improve the quality of their lives through support, education and advocacy.
- This site provides information on Alpha-1 Antitrypsin Deficiency, a genetic or inherited problem that causes emphysema.
- A resource used to help improve the lives of those affected with Alpha-1.
Asthma
- A site where you can type in your question and see a video response with script. Originally produced by the American Respiratory Alliance of Western PA.
- Breath of Life site hosted by the National Library of Medicine. An exhibition examining the history of asthma, experiences of people with asthma and contemporary efforts to understand the disease. Offers links to research, publications & other sites.
COPD
- COPD information from the National Heart, Lung, and Blood Institute, part of the National Institutes of Health.
- The foundation develops and supports programs which improve the quality of life through research, education, early diagnosis, and enhanced therapy for persons whose lives are impacted by COPD.
Global Initiative for Chronic Obstructive Lung Disease (GOLD)
- This initiative works world-wide with healthcare professionals and public health officials to raise COPD awareness and to improve prevention and treatment of this lung disease.
- A non-profit organization that brings together COPD patient foundations and organizations, health professional organizations, individuals, and government agencies in the true definition of a coalition.
Governmental Resources
Centers for Disease Control and Prevention (CDC)
- CDC collaborates with many disciplines to create the expertise, information, and tools that people and communities need to protect their health - through health promotion, prevention of disease, injury and disability, and preparedness for new health threats.
- The Nation's Medical Research Agency
National Heart, Lung, and Blood Institute (NHLBI)
- NHLBI provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives.
- The National Library of Medicine offers archives of texts and abstracts of medical publications on a multitude of health related topics.
U.S. Food and Drug Administration
- This is the site for the U.S. Food and Drug Administration. They maintain an article database on sulfite sensitivities and warnings.
Idiopathic Pulmonary Fibrosis
What is Idiopathic Pulmonary Fibrosis?
- An overview of IPF, an interstitial lung disease, from the National Institutes of Health.
Pennsylvania Idiopathic Pulmonary Fibrosis State Registry
- This registry is a collaboration of five medical centers in PA and is funded by the PA Department of Health and the Simmons Family. Individuals with IPF are encourage to join the registry and access their resources.
- An organization dedicated to finding a cure for IPF and act as an advocate for the IPF community.
Simmons Center for Interstitial Lung Disease
- This is the site is sponsored by the Simmons Center, University of Pittsburgh Medical Center, and contains information regarding idiopathic pulmonary fibrosis: diagnosis, treatment, and research.
Lung Transplantation Support
Lung Transplantation Association, Inc.
- Web site for Lung Transplantation Association, Inc., Crystal River, FL. Provides information on lung transplantation, transplantation centers, etc.
Lymphangioleiomyomatosis (LAM)
- An overview of Lymphangioleiomyomatosis, better known as LAM, from the National Institutes of Health.
The LAM Foundation (lymphangioleiomyomatosis )
- Lymphangioleiomyomatosis, better known as LAM, is a progressive lung disease that typically strikes women in the prime of their lives - most often during their childbearing years. The LAM Foundation urgently seeks an effective treatment, and ultimate
The LAM Treatment Alliance (LTA)
- The LTA's mission is to fast track and aggressively fund research to help eradicate this disease.
Oxygen and Travel
- A site highlighting the key to successfuly traveling with oxygen
- Web site for a company that manufactures backpacks and totes for oxygen cylinders and liquid systems. Visitors can get a description of each item of their product line and also order online.
Primary Pulmonary Hypertension
Primary Pulmonary Hypertension (PPH)
- This link will take you to information on Primary Pulmonary Hypertension (PPH) at the National Institutes of Health.
Pulmonary Hypertension Association
- This association offers educational materials, research news, and support for individuals with pulmonary hypertension.
Sarcoidosis
- Information on sarcoidosis from the National Heart Lung and Blood Institute, National Institutes of Health.
National Sarcoidosis Resource Center
- Web site for the National Sarcoidosis Resource Center. Provides database of physicians and support groups for this disease and additional links.
Sleep Apnea
- An overview of this problem from the National Heart, Lung, and Blood Institute.


Ask questions and get immediate video responses from experienced asthma physicians and well-known Olympian Jackie Joyner-Kersee.




